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Wpływ LHON na system rodzinny

Wpływ LHON na system rodzinny

Jonathan Dator

90,81 €
IVA incluido
Disponible
Editorial:
KS OmniScriptum Publishing
Año de edición:
2025
Materia
Psicología
ISBN:
9786208816568
90,81 €
IVA incluido
Disponible

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Sobre IBD

Niniejsza książka zawiera przełomowe i pierwsze w swoim rodzaju dane empiryczne i badania dotyczące psychologicznego wpływu dziedzicznej neuropatii nerwu wzrokowego Lebera (LHON) na cały system rodzinny. Jego nadrzędnym celem jest zbadanie, w jaki sposób nosiciele tej rzadkiej genetycznej choroby mitochondrialnej, która klasycznie powoduje całkowitą utratę wzroku centralnego i ślepotę prawną, doświadczają uczucia depresji, lęku i poczucia winy oraz czy duchowość, przekonania religijne lub wsparcie społeczne ze strony rodziny, przyjaciół i innych znaczących osób służą i chronią w procesie radzenia sobie. Tekst ten podkreśla potrzebę zintegrowanej opieki w leczeniu chorób fizycznych i psychicznych, ponieważ wiele osób i rodzin potrzebuje dodatkowego wsparcia, wskazówek i empatii po postawieniu diagnozy.

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