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L’impatto della LHON sul sistema familiare

L’impatto della LHON sul sistema familiare

Jonathan Dator

90,81 €
IVA incluido
Disponible
Editorial:
KS OmniScriptum Publishing
Año de edición:
2025
Materia
Psicología
ISBN:
9786208816605
90,81 €
IVA incluido
Disponible

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Sobre IBD

Questo libro presenta dati empirici e ricerche innovative, le prime nel loro genere, sull’impatto psicologico della Neuropatia Ottica Ereditaria di Leber (LHON) sull’intero sistema familiare. L’obiettivo generale è quello di esaminare come i portatori non affetti di questa rara malattia genetica mitocondriale, che in genere provoca la perdita completa della vista centrale e la cecità legale, sperimentino sentimenti di depressione, ansia e senso di colpa, e se la spiritualità, le credenze religiose o il sostegno sociale da parte della famiglia, degli amici e di un’altra persona importante servano e siano fattori protettivi nel processo di gestione. Questo testo sottolinea la necessità di un’assistenza integrata nel trattamento delle condizioni di salute fisica e dei problemi di salute mentale, poiché molti individui e famiglie hanno bisogno di ulteriore sostegno, orientamento ed empatia dopo la diagnosi.

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